09/21/2026
This week marked Jacob’s 22nd clinical trial dosing of Ion363 (Jacifusen / Ulefnersen), and it was a stretch of days filled with relief, gratitude, and one terrifying moment that reminded us how quickly life can turn.
Early Monday morning we arrived at the Martha Morehouse Center for Jacob’s lumbar puncture. Dr. Kolb remains cautiously optimistic — scientific, steady, and hopeful — and praise the Lord, the procedure went perfectly. Those smooth, uneventful dosing days feel like gifts, and we never take them for granted.
That evening, we were kicking back at the Hampton Inn OSU, finally relaxing after a long day and watching Monday Night Football. Out of nowhere, the hotel fire alarm exploded through the quiet. Panic hit instantly. No one at the front desk was answering, and we were scrambling to figure out how to get Jacob out safely — and quickly — without using the elevators. For a few minutes, everything felt chaotic and uncertain.
Thankfully, it turned out to be a false alarm. Someone had pulled the lever. But by then, our heart rates were through the roof and nobody was feeling tired anymore. It’s amazing how fast calm can turn into crisis, and how fast crisis can turn back into relief.
Tuesday’s drive home was peaceful and uneventful — exactly what we needed after the adrenaline of the night before.
All in all, it was a great trip. Another dose behind us, another safe return home, and another reminder of how fragile and precious each moment truly is.
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