Monday marked our 20th clinical trial dosing of our miracle drug, Jacifuson — and the fifth dose since entering Phase 3.
It’s hard to believe we’ve reached twenty. Every single one feels like a gift, and today’s definitely earned a spot in our “top five” list. Everything went as smoothly as we could’ve hoped.
Dr. Kolb was genuinely excited about Jacob’s condition and the direction this drug is heading as it moves toward FDA approval. Jacob’s bloodwork was completely normal, and just like the last few times, he felt good enough afterward to ask for a movie. This time we went to see Super Mario Galaxy, and he loved it.
By Wednesday, the leg pain had returned — a lumbar puncture side effect we’ve unfortunately grown used to — but thankfully it’s nothing a little Tylenol can’t handle.
Another dose behind us. Another day to be grateful. Another step forward.
