03/30.2026
Jacob and I had a call today with Neuralink’s Patient Registry Team. We went into it with real excitement — this felt like a chance to explore whether a BCI, a brain‑computer interface, might someday help Jacob communicate. Neuralink, Elon Musk’s company, is leading the way in this technology, so the opportunity felt meaningful.
But as soon as we shared that Jacob is enrolled in the Ionis Pharmaceuticals ION363 clinical trial, the answer was immediate. His participation in that study automatically disqualified him from theirs. Even though one is a drug delivered through lumbar puncture and the other is a technological implant, there was no flexibility in their criteria. The door closed quickly and firmly.
Moments like this used to shake us. Now, they remind us of something we’ve learned over and over: when we follow the Holy Spirit and trust the Lord with all our hearts, He is faithful to open another door — often one we never expected — right when we need it.
So we’re not discouraged. We’re not defeated. And we’re not done searching for ways to help Jacob communicate more freely.
We’ll keep praying. We’ll keep trusting. And we’ll keep believing that the right door will open in God’s perfect timing.
No comments:
Post a Comment