12/26/2025
Jacob was selected to receive the Erin and Leigh Vierstra Pioneer Award, presented as part of the Alex and Jaci Hermstad Rare Disease Trailblazer Series.
This recognition is given to individuals who are working to advance research and potential therapies within the rare disease community. To be counted among those striving toward progress—alongside families, advocates, clinicians, and researchers—is an honor.
The Trailblazer Awards ceremony will be held online in February, and I’m looking forward to celebrating the incredible people across this community who are pushing boundaries, lifting others up, and refusing to give up.
Thank you to everyone who has supported, encouraged, and prayed for us along the way. This recognition is a reminder of how far we’ve come—and how much hope still lies ahead.
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