Monday, October 27, 2025

10/27/2025 Treatment #18: ION363 PHASE III #3

10/27/2025 Treatment #18: Courage, Community, and a Springsteen Surprise

We rolled into Ohio State University on Sunday with hearts full and spirits high—ready for Jacob’s 18th #Jacifusen treatment. These visits have become familiar, but never routine. Each one carries its own weight, its own prayers, its own quiet hope.

Jacob was ready. We were ready. And once again, Dr. Kolb and his incredible team met us with warmth, precision, and care that goes beyond medicine. The dosing went smoothly, and Jacob entered recovery with strength and peace. He rested for three hours while we reflected on how far we’ve come.

But this trip held something new.

Jacob wanted to go to the movies.

Since the tracheostomy, outings like this have been rare. We’ve learned to adapt, to simplify, to choose rest over risk. But this time, Jacob had a request—and it was "Springsteen: Deliver Me From Nowhere". So we said yes.

We didn’t know how it would go. But we knew it mattered.

And it was beautiful.

Afterward, we went back to our hotel and watched Monday Night Football, and enjoyed a great night's sleep. Tuesday, we made the long drive home, the kind of ride that invites quiet reflection. Jacob did great. He’s resting now, watching a little TV, and we’re holding onto the grace of the day.

We love OSU. We love our team. And we love the moments—big and small—that remind us Jacob’s story is still unfolding, full of surprises, full of strength.



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