08/18/2025
On May 2, 2025, Jacob and I took a leap into the future with an exciting Teams call. Cole Heiner from Cognixion, all the way from their California office, introduced us to the Axon-R clinical trial. This isn't just any clinical trial. Jacob was chosen as one of only five people in the world to test a cutting-edge brain-control interface headset designed for communication.
The Axon-R, a brain-computer interface, or BCI, initially came with a hefty headset, but the weight caused Jacob's eyelids to droop, even with his custom scleral lenses designed to keep his eyes open. Realizing this, Cognixion adapted, swapping the headset for a lighter headband with electrodes along the back, paired with a Samsung Galaxy tablet. The headband was actually designed and created by my wife Barb, who did a tremendous job. She went through two or three iterations to get it just right, and Cognixion was extremely excited about the result. They will likely use it for other patients in the clinical trial.
Now, Jacob can engage with the Axon-R without the strain, as the tablet sits comfortably in front of him. We're in the midst of testing this breakthrough technology, hoping it paves the way for others like Jacob to communicate with ease. Each session, two or three times a week, is a step toward a future where technology and hope intertwine.
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