10/09/2023
We drove back to Ohio State University and received our 9th Jacifusen treatment today. Everything was perfect! Jacob's breathing is improving, and so are his muscles! The ruffling in his tongue is still there, and his speech is becoming more and more difficult to understand. This is largely due to the high pressure air being forced through his airways, via the Astral noninvasive ventilator. When the ventilator is off, his speech is easily understood. Unfortunately, you cannot be left off for more than just a few seconds, due to the weakness in his diaphragm.
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