01/09/2023
5th ION363/Jacifusen dosing! Everything went great! Jacob may soon be moved to the open label (this means no more possibility of a placebo… Guaranteed drug). Shooting for June… We will find out in April, at our next appointment.
Bloodwork shows liver issues. Possible Epstein-Barr virus or hepatitis A. I believe these issues are being caused by the ALS medicine (Riluzole). Liver damage is a known side effect.
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