04/21/2025
Today, I made an interesting discovery. While using the 10s unit on Jacob's right hand I discovered he was able to move his fingers, specifically, his middle finger. The tens apparently provide the electrical current needed for Jacob to manipulate his own fingers!
04/14/2025
It has been 65 days since Jacob's last trach change. I elected to do it today with the help of Mark Toole once again.This change was super easy, but Jacob still ended up sick. His peak inspiratory pressure (PIP), Which is normally between 17 and 19, shot up to the mid 20s again. It stayed this way for a few days.
I think we may go to OSU and see Dr Desilva for the next change. Am concerned that Jacob Stoma has shrunk and the tracheostomy has become too large.
04/08/2025
Dr. Hollinger made the decision to begin the Botox injections again for Jacob. In ALS patients with saliva issues, injections of Botox into the salivary glands, reduce slobbers and improve quality of life for approximately three months before needing repeated. Since stopping this treatment, Jacob's secretions have become very difficult to manage.
