05/24/2024
The Easystand ALS Awareness month video was uploaded featuring Jacob’s journey!
https://youtu.be/0WHuy4KwuyE?si=u07YBcduuFrPfTyz
Friday, May 24, 2024
Friday, May 10, 2024
05/10/2024 Trach Change
05/10/2024
New trach change. I performed this one at home, with the help of Mike Walker. It was a super easy change, however, as always, in the evening, Jacob had a fever of 102° and was sick until the next day. on a side note, Jacob discovered he really likes the Ambu bag*.
(*Mike used it on him while I prepared the new Trach. It wasn’t actually necessary, but Jacob enjoyed it and it seemed to feel good having his lungs expanded)
Thursday, May 9, 2024
05/09/2024 BOTOX
05/09/2024
Appointment with Dr. Hollinger at Marshall Health for Botox injections. He was going to put a little Botox in Jacob‘s jaw muscles to help with atrophy, but noted that home exercises had seem to make quite a difference. He chose not to inject the jaw in light of this discovery.
Wednesday, May 8, 2024
05/08/2024 Stopped Tobramycin
05/08/2024
The first 28 days of Tobramycin Is complete. We will pick this back up 28 days from now.
Tuesday, May 7, 2024
05/07/2024 Infectious Disease Appointment
05/07/2024
We had an appointment today with Doctor Nusair of the Marshall University infectious disease department. He said everything looked great with Jacob and elected to continue him on with theTobramycin prescription. This will be a 28 day on, 28 day off regiment that will continue indefinitely.
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