02/20/2024
Dr. Hollinger had noted increased strength in Jacobs legs and arms. Additionally, his therapist, Ben, had also noticed the increased strength in recent physical therapy sessions. Due to the fact that Jacob is improving, he now qualifies for an additional day of PT, resulting in two days per week!
Today was our first session in this change. Ben has added neck strengthening exercises to Jacob's routine.
02/16/2024
Dr. Stanton had one of his nurses call us and tell us that he had ordered a gift for Jacob, which we could pick up at any time in his office. I drove to the office to pick up the item which was a beautiful piece of art called a Manuscripture.
This act of kindness and love speaks volumes about Dr. Stanton's character and obvious love for his patients. We are humbled and honored that he thought enough of Jacob to gift this to him. We will proudly display it in Jacob's bedroom above his headboard.
02/14/2024
We removed and sent back the Zio heart monitor. Now we wait for the results from Dr. Stanton.
02/08/2024
We went back to Cabell Huntington Hospital for Jacob's second round of Botox injections. This time Dr. Hollinger upped the dosage and is certain this should do the trick for the excessive saliva.
02/03/2024 Jacob was discharged around 2 PM today. We went straight home. He slept most of the day! All is well and hydration is paramount!
02/02/2024
Around 8 PM, Jacob started coughing and could not stop. I suctioned him at least a dozen times, but could not get the rattle out of his chest. We finally decided to go to the emergency room. This was an all too familiar road, so we were airing on the side of caution! Because of the November 5 or deal at CAMC Teays Valley, we made the decision to go to Cabell Huntington Hospital, where our neurologist practices. Dr. Hollinger called ahead for us and the ER crew took a straight back! The chest x-ray looked great, but his bloodwork and vitals indicated a bacterial infection, and more importantly, dehydration. The rattle was a mucous plug in his right bronchial airway, which eventually came loose on its own. They kept Jacob overnight and ran several antibiotics and IV bags through them!
Moving forward, we need a better plan for hydration at home.
