06/17/2023 Parade of Steam

 06/17/2023

One of Jacob's favorite annual events is the Cass Scenic Railroad Parade of Steam. Jacob made sure, during his peg tube surgery, to ask his nurses and doctor if it would be OK for him to go to this. They assured him it was fine and also told mom and I that it was OK. 

So today, we had a very good day at the Cassie Parade of Steam!

If you are interested in the Parade of Steam, please take a look at our very brief video from this year's event.

https://youtu.be/h8EqVzJKHFo?si=vamv5m5lt0K4E14z

06/12/2023 Feeding Tube

 06/12/2023

Jacob's continued weight loss and fear of choking led to PEG tube placement. We were concerned about the surgery and anesthesia, but once again, prayer and God's mercy prevailed! The surgery was performed at Cabell Huntington Hospital and, other than a little bit of soreness, there were no issues whatsoever. Home health care (Tyler), visited us for the first few weeks, but determined that we did not need their assistance and discharged us. Jacob took three cartons of Jevity formula on the first day, and four cartons on the second day.